Sunday, January 25, 2015

I found this article that mentioned a book called "Misdiagnosed" written by and about Jody Berger's search for her medical problem, which ended up being gluten sensitivity.  It took her 2 years and at least 12 different doctors to figure out her diagnosis.  Originally, she went to the doctor because of tingling in her hands and feet, an ignored symptom of gluten intolerance and Celiac Disease.  The doctors told her she had many different autoimmune diseases, but she knew it wasn't adding up.  After 2 years she eventually got her diagnosis.  It seemed like forever to her, but most people wait and search for 10 years or more! In ten years, a lot of damage to the body can be done! Most people are told that they have other diseases and go through multiple treatments that could potentially cause more harm, considering they may not even have these diseases.  Many doctors nowadays want to treat the symptoms rather than finding the root problem and going from there.  In many cases, like Celiac, the only thing that will help will be a lifelong gluten free diet.  If doctors give people with Celiac medications for each of their symptoms, all it is doing is masking a problem that could be potentially life threatening.  But many doctors don't give you the time of day until permanent damage is done or it becomes so bad it is life threatening.  Why not figure out the problem before it gets too bad.

Wednesday, January 14, 2015

 This week I did more research on Dr. Fasano at Mass General. Dr. Fasano started at the Center for Celiac Research at University of Maryland.  While researching a vaccine for Cholera, he discovered a toxin, zonulin.  He found that the zonulin plays a role in the  pathogenesis of a number of autoimmune diseases, including celiac disease, type 1 diabetes, and certain cancers and diseases of the nervous system. He is now the director at Mass General's Celiac Research Center. Finding a cause of this disease is a priority for the Center of Celiac Research. Fasano says as many as 1 in 133 people have this disease. Grosse Pointe South has 1,673 students, so approximately 12 students have Celiac, just in our school. I then found out that there is a nationwide walk/run to raise money and awareness for Celiac and Celiac research. For this walk you can form your own teams and gather people to support the Celiac research. I plan to try to form a team for the event. Although I can't do the walk/run due to my current health conditions, I hope to get enough people to for a team. This walk takes place in various cities around the U.S. The Tri County Celiac Support Group is putting on a walk at the Ford House here in Grosse Pointe, on Sunday May 17, 2015 at 8:00am. The link for all the walks held around the country and ways to donate money for the Celiac research is below. Next week, I plan to make a webpage on the walk site for my team.
www.celiacwalk.org